There’s a new girl in my kindergarten class who’s autistic and it’s like she’s barely / not really verbal but like idk she opened up to me a little, I don’t tell people I’m on the spectrum at work because they already treat me horribly because I’m the only poc there but like she’s a little Latina girl who I know exactly how she feels and like I was like “hey Nina, If you don’t wanna talk it’s okay, just thumbs up or thumbs down if you understand the (math) problem? Okay?” So we sorta made like a thumbs up and thumbs down thing between us and today it was the most surreal thing because I like “I know they tell you to make eye contact but I’m gonna tell you a trick, look at their neck, chin, hair, and whatever is behind them, I don’t like eye contact very much either? Thumbs up?” And she said with the smallest voice “Thankyou , for not saying I’m dumb” I wanna be the person I needed when I was her age
why caffeine works for some of us, but not all, and even then it often depends on the way you take it and the dosage
how come all of us have gastrointestinal problems?
addendum to the above: what exactly are our gastrointestinal problems? are we genetically more likely to have autism be comorbid with gluten sensitivity/colitis/IBS/lactose intolerance/whatever else or is it something completely different? is it psychosomatic? the fuck
okay but how does being sensory-seeking work. and what does stimming do to your brain. what neurological function are we facilitating with flapping hands and rocking back and forth and spinning? wouldn’t it be great if we had a serious long-term study of the brain on stimming?
are you more likely to be autistic and LGBT?
what are things we do better than neurotypicals?
but no it’s always “how do we train the animals to be something they’re not” or “but what made you this way??” or “Time To Find A Cure”
why do we all have sleep disorders
what’s up with the joint problems
and the faceblindness
what are the communication patterns here? how come I can meet one autistic person and immediately grok how they communicate, and be confused by another, but all neurotypicals are confusing? what’s going on with that?
how much of what we currently recognise as ‘autistic symptoms’ are actually ptsd symptoms? or autistic ptsd symptoms?
ALL. OF. THIS.
OK, so I decided to check out which of these had been researched and what they found.
Caffeine – not much, but this study looks interesting. It suggests that if you’re not a regular caffeine consumer, caffeine might temporarily make you act less autistic.
Oh, hey, this study has a potential answer to both caffeine response and sleep problems! There’s apparently an enzyme that affects both caffeine and melatonin metabolism.
GI issues – this study didn’t find a link. The rate of GI issues was 9% for both autistic and NT children. The most common GI issues for both groups were food intolerance, usually lactose intolerance.
This study found a much higher prevalence of GI issues in autistic kids (17%), although they didn’t compare them with NTs. They also suggest that there may be a link between regression and GI issues, and confirm yet again that the MMR vaccine has nothing to do with autism. The most common GI issue they found was constipation, followed by diarrhea and food allergies.
This study compared GI issues between autistic kids and NT siblings. They found that 83% of the autistic sample and 28% of their siblings had at least one possibly-GI-related symptom. They also give data on specific GI symptoms, such as gaseousness (54% of autistics and 19% of siblings), abdominal discomfort (44% of autistics and 9% of siblings), and so forth. They found 20% of autistics and 2% of siblings had three or more poops per day, 32% of autistics and 2% of siblings had consistently watery poops, and 23% of autistics and none of their siblings had large changes in consistency. Also, apparently parents felt that 49% of the autistics and none of the siblings had particularly foul-smelling poops. And another for the sleep question – this study found 51% of autistics and 7% of siblings had sleep problems, with sleep problems being more common in autistic kids with GI issues.
Stimming and Sensory-Seeking – I couldn’t find much. This study I found is interesting, but it’s about more OCD-like compulsions, not actually stimming.
Oh, here’s something. A big detailed review of neurophysiological findings of sensory processing in autism.
LGBT – I’ve written up stuff about this elsewhere, but in short, autistic people, especially AFAB autistics, are definitely more likely to be asexual, bisexual, kinky and trans. Some relevant studies here, here, here, here, here, here, and here, and there’s plenty more to be found.
Autistic Strengths – Well, Laurent Mottron and his team, including autistic rights advocate Michelle Dawson, have done a lot of research on what they term ‘enhanced perceptual functioning’, which they theorize explains the Block Design peak sometimes seen in autistic people. (Block Design is one of the subtests of the Weschler’s IQ test, and autistic people often show a relative strength on this test relative to other subtests on this test.) In general, I highly recommend looking at their research. It really shows what can happen when an autistic person gets involved in autism research.
This study by a different research team finds that children gifted in realistic still-life drawing have higher rates of repetitive behavior typical of autism (though none of their sample were actually autistic), and show similar visuospatial profiles to autistic kids.
This study finds that perfect pitch is associated with autistic traits. On the AQ, musicians with perfect pitch scored higher on the imagination and attention-switching subscales than musicians without perfect pitch and non-musicians. This study found a subset of autistic kids have extremely good pitch perception, with no relationship to musical training.
People in STEM fields are more likely to be autistic or have autistic relatives, especially mathematicians. (Which probably comes as no surprise to anyone who’s spent time in the math department of any university.) This study also finds that autistic kids tend to be better at math.
Sleep – as a couple studies above mentioned, sleep issues in autism could be related to melatonin metabolism or GI issues. This study found that 53% of autistic kids, 46% of kids with intellectual disabilities and 32% of NT kids have sleep problems. Autistic kids are both slower to fall asleep and more likely to wake up early than NT kids.
This study found a correlation between autistic traits and sleep problems in autistic kids. Repetitive behavior is related with being slower to get to sleep and not getting as many hours of sleep per night; communication problems are related to being slower to get to sleep, not getting as much sleep, and parasomnias (night terrors, restless leg syndrome, etc); and social differences are related to being slower to get to sleep, not getting as much sleep, waking up at night, parasomnias and breathing problems while sleeping.
This study found a strong correlation between sleep problems and sensory hypersensitivity among autistic kids. And this study found that autistic and/or intellectually disabled kids showed strong correlations between poor sleep, anxiety and behavior problems.
And this study found that 67.9% of autistic kids have sleep problems, and parents of kids with sleep problems were under more stress. Boys and younger children had more sleep problems.
Joint problems – This study found that people with Ehlers-Danlos Syndrome, a connective tissue disorder that causes joint hypermobility, were more likely to be autistic. (And also to have mood disorders and attempt suicide.)
This study suggests that people with joint hypermobility have larger amygdala and various other brain structural differences, which was correlated with anxiety and higher sensitivity to internal body sensations. And this study found that 31.5% of people with ADHD and 13.9% of NTs have benign joint hypermobility syndrome.
Faceblindness – This study confirms that prosopagnosia (faceblindness) is more common among autistic people, with 67% having some degree of facial recognition difficulties.
This study reviews three theories about why autistic people have prosopagnosia, and concludes that the most likely of the three theories is the idea that avoiding eye contact impairs face recognition.
This study found that autistic people are slower to notice faces in scenes, and pay less attention to faces.
The last two questions I’m not really sure where to start.
Re: GI issues
Stress can cause GI issues, and a good number of autistics are mistreated in some way, whether in school, home, therapy, or someplace else.
I want to know if GI problems are common in autistics who aren’t mistreated in any way. But because there are so few of those folks….
I had some GI issues prior to school, but I’m not a great sample because I also have an autoimmune disorder that eats my intestines. School stress definitely exacerbated them, though.
This is a response to a community member who asked about teaching social skills to autistic kids. It’s by no means complete and is more of a rambling stream of thoughts that I hope can prompt some interesting discusssion. Also, I’m aware that the formatting is a bit messy, but it’s the best I can do with my mobile device at the moment.
So, I’m going to start by looking at some definitions of the word “socialization,” which is usually the core of what people are typically seeking to develop when talking about teaching “social skills.”
“1. the activity of mixing socially with others.
2. the process of learning to behave in a way that is acceptable to society.”
-What came up when I googled it
“A continuing process whereby an individual acquires a personal identity and learns the norms, values, behavior, and social skills appropriate to his or her social position.”
-Dictionary.com
“The act of adapting behavior to the norms of a culture or society is called socialization. Socialization can also mean going out and meeting people or hanging out with friends.”
-Vocabulary.com
Now, this was the definition I found most comprehensive and interesting…
“Process by which individuals acquire the knowledge, language, social skills, and value to conform to the norms and roles required for integration into a group or community. It is a combination of both self-imposed (because the individual wants to conform) and externally-imposed rules, and the expectations of the others. In an organizational setting, socialization refers to the process through which a new employee ‘learns the ropes,’ by becoming sensitive to the formal and informal power structure and the explicit and implicit rules of behavior. See also organizational culture and orientation.”
-Businessdictionary.com
Unfortunately, when a lot of professionals teach social skills, they focus on very superficial goals and teach them in an inflexible, compliance-based manner that erases the true complexity of real life society. It is often assumed that disabled people, especially children, are incapable of understanding the nuances and inconsistency of social “rules,” so teaching with this reality in mind is often not even considered.
For example, the original post that prompted this introduces and teaches a very rigid way of meeting a new person. It’s a social script with potential utility, but if it were used consistently could actually come across as very awkward, inauthentic and in the end be alienating. I’ve regularly got talking to a stranger and sometimes even talk to them for over an hour before going, hey, by the way, what’s your name, I’m so and so.” Sometimes we don’t get each other’s names at all, and it’s still a positive and pretty “typical” social interaction. The eye contact focus and standard is always ridiculous, the most I ever teach nowadays is that if a client *wants* to make eye contact, there are situations where people may commonly expect it, and that if they’re uncomfortable, they can look between a person’s eyes (and people really can’t tell). I also teach that sometimes when people demand eye contact, what they really want is assurance that you are listening, so perhaps if eye contact is too stressful, find an alternative way to let them know you are paying attention such as saying “I hear you” or giving a thumbs up.
In my own current practice, I follow a flexible formula meant to support my client in achieving their goals…
🌸What does the client want to know? What areas do they feel like they are struggling in and want to learn more about? I try to talk with my clients about this as much as possible and unpack and critically assess these desires.
🌸Have I ruled out issues related to anxiety, sensory overload, etc? What can be done to make accommodations for those issues?
🌸I try to stay informed on broader research into human development while I actively question what “socialization” even is… and take in everything from a critical perspective. Behaviorism is a field that generally ignores research from other fields, and focuses primarily on external reinforcement and punishment to teach skills. There ARE alternatives. In my own practice, I have found sensory integration, real world integration and trauma-informed practices to be incredibly helpful and much more holistic than conventional ABA approaches.
🌸It’s fine to teach and expect “good manners,” but keep an open mind about ways to keep those norms flexible for the person.
🌸Explain things in advance, but avoid rigid “social skills curriculum.” Socialization is not best learned in a hyper restricted course, but in well… out in actual society. The real world will always throw curveballs in. These are opportunities to explain nuance, personal choice, cultural differences, etc.
For example, I had a client who liked blasting loud, intrusive music on his phone when we were at a busy park. I explained to him that other people didn’t like it because they could not choose the music and were being forced to listen to it, and that headphones were a good alternative. Then, a man walked by us, blasting his own loud and intrusive music from his phone. This made for some very interesting conversation about this social situation, and ultimately my client decided that headphones were the way to go (except when no one else but us are at the park). There is no way we could have had that rich of an experience were we not in that busy park. And I also didn’t have to manufacture any reinforcement schedules or punishments.
🌸The real world doesn’t have to be a place where one learns to fit in and try to find acceptance from people who are reluctant to give it. I often take clients to coffee shops and cafes. We frequent the ones with workers who “get it” and atmospheres that fit with their personalities. We avoid the ones where we have to spend all our time managing sensory overload and educating ignorant, judgmental people. There’s always other “weird, quirky, misfit” people out there… instead of focusing on being popular or well liked, work on skills that help clients find and get along with people who like them for who they are.
Several years ago, a behaviorist I worked with bragged to me about how she had a client who was going to McDonald’s after school with a group of friends. But then, the kid read a book about animal rights and said he didn’t want to go to McDonald’s anymore. Instead of objectively explaining to him the various potential social consequences of no longer going to McDonald’s and perhaps teaching him ways to find other youth interested in animal rights, she forcefully insisted that he had to keep going to McDonald’s or he would have no friends. He stayed quiet about his beliefs and kept going to McDonald’s because he believed her. This could have been an opportunity for the client to establish their own identity and values, learn to manage disagreement, or even find new friends…. instead, this person was told their identity and values don’t matter. Not cool.
🌸If there is a safety issue involved, be very open and honest with the client about this. For example, if they are doing something illegal, could hurt others or could get them beat up, don’t be afraid to explain the consequences this behavior could lead to and set clear boundaries.
🌸Teach consent and the importance of respecting boundaries in a comprehensive and ongoing manner. Not just other people’s boundaries, but theirs as well.
🌸There may be holes in the client’s baseline knowledge that need to be filled before moving forward. For example, I worked for a long time with a client who hit puberty and became very sexually interested in women. His parents never taught him about sex, consent, bodies, or any of that, because of their religious beliefs and because they did not believe a disabled person like him could be sexual. His issues were compounded by the fact that he had never had his own boundaries or consent respected. People had touched him without permission and forced him physically to do things his entire life. He also consumed lots of media unsupervised, where things like boundaries and consent didn’t matter. Be patient with these complications.
I spent the first several weeks of working with him fending off what counts as sexual harassment and attempts at inappropriate touching. Because he had never learned about consent, it was ineffective to simply explain that it wasn’t okay to touch my leg without permission. He was repeating what he had seen and experienced that had been deeply ingrained before meeting me. For a long time, my nickname was “Branch,” after the character from the Trolls movie. He loved that film but had taken a problematic message from it…. that deep down, everyone wants to be touched and hugged and dance, and if you coerce them enough, they will eventually go along with it. We had to have many, many conversations about what consent was, why he had the feelings he did, the potential legal consequences for behavior like his, why past interactions people had with him weren’t okay, why movies don’t always represent good behavior, and so on. He is someone with more limited expressive verbal and receptive language skills than the average person, so I was constantly seeking new examples and ways of explaining. One day, he got in my car and excitedly said he finally got what I had been talking about, and showed me an old “Sonic Sez” video he had found on YouTube. The video is a brief overview of boundaries that explains the basics of consent. After that, we had hardly any issues with inappropriate touching, etc.
🌸Presume competence and have faith that they might surprise you and learn something suddenly and/or on their own. Discard any possible pretentions that you might have all the answers or that your way of socializing is the only or best way.
🌸Don’t trick or coerce clients into doing things. If they ask why you want them to try something, give them an honest, judgment free, no bullshit answer.
🌸Socialization can be generally divided into two categories: necessary (work, running errands like going grocery shopping or to the bank, etc) and optional (hanging out with friends, going to a social gathering of new people). The social rules/scripts in the first category tend to be less flexible, but the social rules in the second can be vastly more important if the person has a strong desire to build and maintain a relationship. Screwing up a social interaction with a clerk at the store may be embarrassing or even lead to a major meltdown, but doesn’t as frequently lead to the severe emotional crisis that a screwed up interaction with a dear friend likely would.
Part of realistic socializing is having to learn and deal with the fact that some people just won’t like or understand you, and that’s not necessarily a reflection of your value. Hurt feelings, misunderstandings, and negativity are part of everyone’s life, even people with “good social skills.” Be realistic about this and don’t make it all about their autism/disability. This is where it becomes very important to get the client involved in what they want to learn.
🌸At the end of the day, the most rewarding relationships are the ones where a person can be authentic. A lot of times professionals will try to force autistic kids to be friends with (neurotypicals) kids they just don’t mesh with, and the kids would have an easier time if they were introduced to people already similar to themselves. I struggled in absolute misery for years as a child, trying desperately to be friends with people who didn’t care how hard I was trying to have good social skills and get along with them. A lot of those problems faded when I finally said “yanno what, I am different from most my peers, and I’m just gonna hang out with the other weirdos and people who accept me how I am.” I was not lucky enough to have adults who coached me through this, and I didn’t figure it out until I was in high school.
Well-meaning professionals and parents often focus on who *they* want a person to be friends with, instead of finding communities that are already embracing people like them. Sometimes that might even mean socializing online. A lot of neurotypivals find that idea upsetting and not encouraging “real friendships”, but those friends can be lifesavers for someone struggling to make connections in an offline community.
🌸Society is changing. Autism awareness is slowly moving into acceptance, inclusion and accessibility. Be part of that shift.
The Autism Women’s Network has announced that their name is changing to the Autistic Women & Nonbinary Network! We applaud this shift to openly include our autistic, nonbinary community members.
If you’re following the whole Hans Asperger debacle:
You can find that article here. It provides a detailed look at the matter. This piece, as well as Steve Silberman & Maxfield Sparrow’s Tweet responses, add important nuance and autistic voices to the discussion.
Maxfield Sparrow talks about the impact of this news about Asperger, giving advice to fellow autists/aspies, and asks the question “Why was the first printing of “NeuroTribes” so kind to Asperger?”.
Silberman’s reply to that is extensive. Still, it is important to know for anybody telling others to just “read NeuroTribes”. Part of it reads:
“The reason I didn’t attempt to overturn that consensus was that I didn’t have access to the data in Sheffer’s book and Czech’s paper, which they deserve credit for uncovering. It was widely believed that Asperger’s case files had been destroyed during the war, but Czech found them in a municipal archive in Vienna. That’s where a lot of this new information is coming from.”
Through no fault on Silberman’s part, he did not have access to the full information. And Silberman states that Hertig Czech did not give him the same information about Asperger as he gave the author of “In A Different Key”. Czech had refused to provide the details that came out in that book because “he wanted to first publish the information under his own name”. Which is messed up, in my humble opinion. Later in the article, Edith Sheffer is displayed as having misrepresented Lorna Wing’s attitude to the term “Asperger’s” during her book’s epilogue. It goes to show what a grey area all this research and publishment can be. Everybody appears to have a bias (Silberman included) and this affects their speech. To gain a clear view, all talkers must be examined.
Maxfield Sparrow also makes a valid point here:
“One good thing that came out of reading Sheffer’s book was that it brought me a step closer to understanding and embracing Autistic Pride. I struggle with being okay about being Autistic and often Autistic Pride seems just a bridge too far. But seeing more clearly that we have always faced the barriers we face today has stirred some pride in being part of a people who survive against the odds. Seeing non-compliance pathologized by Nazi doctors makes me proud to belong to a people who resist oppression. And realizing that so much of what passes for therapy and accommodation today would be wholeheartedly embraced by Nazi doctors reminds me that the monsters who killed Autistic children 80 years ago were also human beings with families and friends and loving relationships. It reminds me that otherwise good people today could also be monsters.”
Honestly, I encourage you to read the whole piece, even though it’s lengthy. Don’t leave this at the quotes I picked out as they cannot give the entire picture. It must be viewed fully. Because then you can form your own opinion on the article fairly.
Maxfield Sparrow and Steve Silberman have a reciprocative discussion, both asking and answering questions, delving much deeper into it than “Hans Asperger isn’t the problem!” vs “Hans Asperger is the Devil!”
Their conclusions:
“[Maxfield Sparrow:] When the chips are down, I will always join with my neurotribe. So I want to officially state that, while I still don’t personally want to be called an Aspie, I am ready to fight on behalf of my Autistic siblings who do connect with that identity—not as a euphemism for high functioning, but as a cultural marker of their understanding of themselves and the world we live in. No, you cannot take away the identity of thousands of Autistics! Asperger had deep flaws, but the identity that has grown around his name is valid and the people who identify with Asperger’s have the right to decide for themselves whether to keep his name or not.
Steve Silberman: I agree. I think autistic people should be leading the response to this new information and determining what happens to the phrase Asperger’s syndrome. One of the best things that could come out of this is a wake-up call, because concepts like eugenics reassert themselves in every historical era—whether it’s Nazis talking about “life unworthy of life,” geneticists in Iceland talking about “eradicating” Down syndrome through selective abortion, a presidential candidate mocking a disabled reporter from the podium while bragging about his “good genes,” or autism charities framing autism as an economic burden on society. Resisting institutionalized violence requires perpetual vigilance.”
No. We’re just capable of having flaws as NT people are. Get out of here with this “autistic people can’t be sexist or racist” bullcrap. I’ve known enough sexist autistic men and racist autistic white people to know it’s not true. Smash that goddamned pedestal.
These children often love art and building blocks, such as Legos. They get easily immersed in projects. Math concepts such as adding and subtracting need to be taught starting with concrete objects the child can touch. Drawing and other art skills should be encouraged. If a child only draws one thing, such as airplanes, encourage him to draw other related objects, such as the airport runways, or the hangers, or cars going to the airport. Broadening emerging skills helps the child to be more flexible in his thinking patterns. Keep in mind that verbal responses can take longer to form, as each request has to be translated from words to pictures before it can be processed, and then the response needs to be translated from pictures into words before it is spoken.
MUSIC AND MATH THINKERS
Patterns instead of pictures dominate the thinking processes of these children. Both music and math is a world of patterns, and children who think this way can have strong associative abilities. They like finding relationships between numbers or musical notes; some children may have savant-type calculation skills or be able to play a piece of music after hearing it just once. Musical talent often emerges without formal instruction. Many of these children can teach themselves if keyboards and other instruments are available.
VERBAL LOGIC THINKERS
These children love lists and numbers. Often they will memorize bus timetables and events in history. Interest areas often include history, geography, weather and sports statistics. Parents and teachers can use these interests and talents as motivation for learning less-interesting parts of academics. Some verbal logic thinkers are whizzes at learning many different foreign languages.